Chevy & GMC Vans

Sad and sorry to say that i'll probably be spending more time there than here, although of course I'll never quit coming here.

I've been diagnosed with a rare form of muscular neuron disease similar to Lou Gehrig's Disease (ALS). Not much research on it. We are searching for specialists amongst the nurologists.

If it were just my legs, then atleast I could still drive the trusty AstroLander thru the mountains and even camp. But unfortunately , AHCD usually takes the hands and arms first, as seeming in my case so far.

Already sold my racing kayaks, and 2 outta my three mountain bikes. I'll ride my 5" full suspension bike as long as I can. Can't quite get myself to let go of my sea kayaks and white water boats yet...stupid, I know. My 2010 Gas Gas is too snappy for me too handle with the lack of precision control of my hands, so I'll put it up for sale too. The '05 is not quite as responsive so I can still get some rides in this winter and we'll see how that continues to go. The rides will be short because the colder it is, the quicker I lose function my right hand. And my right forearm has already atrophied to the point of getting a lot of arm pump and burning when riding ruff and fast terrain.

Building my van thru the wisdom of ASV was one of the most rewarding things I've ever done. It's taken Jen and I to some incredible places we didn't even know existed, we met many wonderful people along the way, and made some great lasting friendships . With AHCD, the body goes to Hell, but the mind stays relatively sharp for the duration, so i'll always be able to have and cherish the memories we made with the AstroLander.

Cheers to my friends here at ASV. See ya round...

I'm very sorry to hear that Tom. It's not fair because you don't take your health for granted and you try to live life to the fullest. I don't know much about AHCD... is it genetic? Is there anything people can do to lower their risk?

Thanks so much for your cheerful presence and all your contributions to the forum. You are an awesome member and your van is an inspiration to many.

Tom.You are the one member who has my heart with everything you have done.


It is a sad day to have heard this news this morning.



I will pray for you to be able to fight this.


Gary

So sorry Tom. That means as your capabilities decrease, the rest of us need to step up our adventures and share them. I doubt this needs to be said... but don't be a stranger around here. Your ASV family will always be here for you.

So sorry to hear Tom. Do they have any idea as to how fast the progression usually is? I hope you can still get out to do some camping come spring and summer. My thoughts are with you.

Tom, this is just devastating news. I am so sorry. If there is anything I can do for you and Jen please let me know. Keep me posted on the prognosis. Our prayers are with you.

Likewise of you need any help from the Vancouver guys just ask. We are only a hour away.

Well that downright sucks! I am so glad you are here and you always have something positive to say. Just be glad for family and that does include the ASV family. If you need anything, you know we'll help if we can.

Damn. So sorry to hear that Tom. Hang in there and try to enjoy life as best you can. If you guys ever want
to come down to the Hood River area you'll always have a place to stay at my house.

My prayers are with you,

Joe

Here's hopeing today was a good day, Tom !
Dune
"Keep on, keepin on"

I'm at a loss for what to say....

Your in our prayers Tom.

Tom i too am at a loss for words.......i am new to these boards and don't know you well, but i have been studying every post and detail of your van for over a year, You are the reason i own an astro. I wish there were ways i could help now or down the road.

You and your family are in our prayers and we are here to support you in any way possible.

Ryan

I'm......shocked.

I don't know you that well, but have always admired your zeal for life. You are one of those who has truly made the best of every day. Something tells me you will continue to make the best of whatever life throws at you.

Be strong, bud!

Thanks for the replies and well words, guys.

Thought you'd get a kick outta my lifelong bud (retired Air Force)

http://youtu.be/xfeIXZg23bs

Great Video,
I am at a loss for words here too Tom.
Not sure how I ever missed this one