I'm now a registered member of ALS forum

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T.Low
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I'm now a registered member of ALS forum

Post by T.Low » Fri Nov 02, 2012 6:49 am

Sad and sorry to say that i'll probably be spending more time there than here, although of course I'll never quit coming here.

I've been diagnosed with a rare form of muscular neuron disease similar to Lou Gehrig's Disease (ALS). Not much research on it. We are searching for specialists amongst the nurologists.

If it were just my legs, then atleast I could still drive the trusty AstroLander thru the mountains and even camp. But unfortunately , AHCD usually takes the hands and arms first, as seeming in my case so far.

Already sold my racing kayaks, and 2 outta my three mountain bikes. I'll ride my 5" full suspension bike as long as I can. Can't quite get myself to let go of my sea kayaks and white water boats yet...stupid, I know. My 2010 Gas Gas is too snappy for me too handle with the lack of precision control of my hands, so I'll put it up for sale too. The '05 is not quite as responsive so I can still get some rides in this winter and we'll see how that continues to go. The rides will be short because the colder it is, the quicker I lose function my right hand. And my right forearm has already atrophied to the point of getting a lot of arm pump and burning when riding ruff and fast terrain.

Building my van thru the wisdom of ASV was one of the most rewarding things I've ever done. It's taken Jen and I to some incredible places we didn't even know existed, we met many wonderful people along the way, and made some great lasting friendships . With AHCD, the body goes to Hell, but the mind stays relatively sharp for the duration, so i'll always be able to have and cherish the memories we made with the AstroLander.

Cheers to my friends here at ASV. See ya round... :cheers:
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Church bells ringing in the middle of a gunfight.

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Re: I'm now a registered member of ALS forum

Post by timelessbeing » Fri Nov 02, 2012 7:45 am

I'm very sorry to hear that Tom. It's not fair because you don't take your health for granted and you try to live life to the fullest. I don't know much about AHCD... is it genetic? Is there anything people can do to lower their risk?

Thanks so much for your cheerful presence and all your contributions to the forum. You are an awesome member and your van is an inspiration to many.

:partyman:

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Re: I'm now a registered member of ALS forum

Post by 1Gary » Fri Nov 02, 2012 11:25 am

Tom.You are the one member who has my heart with everything you have done. :heart:


It is a sad day to have heard this news this morning.



I will pray for you to be able to fight this.


Gary
1979 Malibu drag race only car
1999 Sonoma 4.3 5 speed-Rufus
1989 Astro-Ole Yellar cancelled-still selling off parts
1985 Astro-shop van R.I.P. my friend
1994 Astro LT RWD W4.3 rod knock RIP
1982 Winnebago single rear wheel-Chevy 350 Scraped 1/28/13-broken dreams......


Rochester,NY

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Re: I'm now a registered member of ALS forum

Post by mdmead » Fri Nov 02, 2012 1:32 pm

So sorry Tom. That means as your capabilities decrease, the rest of us need to step up our adventures and share them. I doubt this needs to be said... but don't be a stranger around here. Your ASV family will always be here for you.
Matt
Selah, WA
-96 GMC Safari AWD Hi-Top Conversion -->Stalled 5.3L swap & 5" lift
-74 Ford Bronco -->Far from perfect but mine!
-99 V-10 Ford Super Duty Super Cab 4x4 -->Stock with 285 Cooper ATs
-00 Ford Focus Wagon -->The Red Turd
-95 Ford 24' Class C Motorhome -->My big block sleeper
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-04 Ski Doo REV Summit -->Still several chassis behind!


No new projects until the current ones are done!

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Re: I'm now a registered member of ALS forum

Post by Kidhauler » Fri Nov 02, 2012 4:52 pm

So sorry to hear Tom. Do they have any idea as to how fast the progression usually is? I hope you can still get out to do some camping come spring and summer. My thoughts are with you.
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Re: I'm now a registered member of ALS forum

Post by Smiliesafari » Fri Nov 02, 2012 6:35 pm

Tom, this is just devastating news. I am so sorry. If there is anything I can do for you and Jen please let me know. Keep me posted on the prognosis. Our prayers are with you.
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Re: I'm now a registered member of ALS forum

Post by Kidhauler » Fri Nov 02, 2012 7:48 pm

Likewise of you need any help from the Vancouver guys just ask. We are only a hour away.
1999 Safari Touring edition.
trailer tow pack with a 3:73 posi
Bucket bench seats, Rear heat, Rear Airconditioning.
teal green
300 000 kms
AirRide air bags in the rear to fix soft stock suspension.
Onboard aircompressor to make it all work nice.

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Re: I'm now a registered member of ALS forum

Post by LiftedAWDAstro » Sat Nov 03, 2012 1:45 am

Well that downright sucks! ](*,) I am so glad you are here and you always have something positive to say. Just be glad for family and that does include the ASV family. If you need anything, you know we'll help if we can.
Current rides:
2013 Toyota Tundra DC 4x4
2008 Dodge Nitro 4x4
2005 Nissan Sentra 1.8S Special Edition

Mileage spreadsheet

Vans owned:
1986 Safari 2.5L 4 speed manual - scrapped
1995 Astro 2WD conversion 4.11 posi, shift kit, DHC rock rails - sold to Skippy
1998 Astro 4x4 D44, D60, NP231, full hydraulic system with 9k# Milemarker winch and snow plow - sold to Lockdoc
2003 Astro AWD all stock - traded for a 3/4 ton truck
2005 AWD, 4.10's - sold to skippy

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Re: I'm now a registered member of ALS forum

Post by H2OJoe » Mon Nov 05, 2012 3:49 am

Damn. So sorry to hear that Tom. Hang in there and try to enjoy life as best you can. If you guys ever want
to come down to the Hood River area you'll always have a place to stay at my house.

My prayers are with you,

Joe
2001 Astro LT AWD "Redneck Edition", 4" Custom Lift, 30x9.5R15LT on stock wheels, Hightop conversion, custom interior, custom roof racks, external solar shower, front recovery points

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Re: I'm now a registered member of ALS forum

Post by dunedog » Mon Nov 05, 2012 8:19 pm

Here's hopeing today was a good day, Tom ! :cheers:
Dune
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Re: I'm now a registered member of ALS forum

Post by astrozam » Mon Nov 05, 2012 9:14 pm

I'm at a loss for what to say....

Your in our prayers Tom. :cry:

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Re: I'm now a registered member of ALS forum

Post by Snowgeek » Wed Nov 07, 2012 5:48 am

Tom i too am at a loss for words.......i am new to these boards and don't know you well, but i have been studying every post and detail of your van for over a year, You are the reason i own an astro. I wish there were ways i could help now or down the road.

You and your family are in our prayers and we are here to support you in any way possible.

Ryan
2004 Astro (was AWD now 4X4) 125,000 miles: purchased April 2012
Colorado Camper Van poptop
4" Overland lift, Rancho 5000 Cooper AT3 245/75/16 C,
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I am copying a few of you hope you don't mind!

See my build here

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Re: I'm now a registered member of ALS forum

Post by peter » Thu Nov 15, 2012 9:42 am

I'm......shocked.

I don't know you that well, but have always admired your zeal for life. You are one of those who has truly made the best of every day. Something tells me you will continue to make the best of whatever life throws at you.

Be strong, bud!
"Just keep swimming..."
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T.Low
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Re: I'm now a registered member of ALS forum

Post by T.Low » Wed Sep 03, 2014 1:50 am

Thanks for the replies and well words, guys.

Thought you'd get a kick outta my lifelong bud (retired Air Force)

http://youtu.be/xfeIXZg23bs
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Re: I'm now a registered member of ALS forum

Post by doyoulikeithere » Wed Sep 03, 2014 2:18 am

Great Video,
I am at a loss for words here too Tom.
Not sure how I ever missed this one
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1987 Astro - With 5 Speed & 4wd.

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